Resources to Support Improvements in Public Policymaking
The Future of Children: Princeton-Brookings: Defining the Challenge and Opportunities for Children in Managed Health Care: An article from a parent about the challenges of managed health care to support the needs of his son with a medically fragile condition. Carolyn Gleason, Jonathan A. Finkelstein. http://futureofchildren.org/futureofchildren/publications/journals/article/index.xml?journalid=508&articleid=2608sectionid=1718
How to Find Your Legislators provides biographical and voting (how they voted) information for federal (Congress) state and local elected officials. http://www.vote-smart.org/
Institute for Safe Medication Practices: This website will help you find information about the medications you are on and allow you to help report and prevent drug-related errors. http://www.consumermedsafety.org/
National Survey of Children with Special Health Care Needs CSHC Data–the National Survey of Children with Special Health Care Needs (NS-CSHCN) provides an in-depth statistical view at the health and functional status of children with special health care needs in the U.S., and by state. http://cshcndata.org/
National Survey of Children with Special Health Care Needs–the New York State snapshot of statistics described above. http://childhealthdata.org/browse/snapshots?geo=34#bottom
President Obama’s Agenda for Disabilities in the White House is a detailed view of the President’s principles and policies on improving life and resources for people with disabilities of all types. http://www.whitehouse.gov/agenda/disabilities