Below are some useful sources of information on pain management, palliative care and end of life planning.
End of Life Care for Children: An excellent website from the Nemours Foundation with information about care, palliative versus end of life, financial needs and more. http://kidshealth.org/parent/system/ill/bfs_hospice_care.html
Help Starts Here: About Pain: This web site/document by the National Association of Social Workers (NASW) describes the many varieties of pain, how to discuss pain with your physician, options and resources and how social workers can help with pain management. http://www.helpstartshere.org/health-and-wellness/about-pain.html
Palliative Care at St. Mary’s Healthcare System for children offers parents contacts for enquiring about palliative care programs and specific services. http://stmaryskids.org/patients-and-families/our-services/palliative-care
Resources for Patients: Things to Ask at the Hospital: This web site by Planetree provides a collection of tools and information on helping you discuss your or your child’s pain with your healthcare team. http://www.planetree.org/Puttingpatientsfirst.html
Resources on Preparing for End of Life The American Cancer Society offers information on what to expect when you or someone you care for are nearing the end of life, as well as information on hospice care and on coping with the loss of a loved one. http://www.cancer.org/Treatment/NearingtheEndofLife/index